Some days are lost in the struggle and yesterday was hard. Even then I was worried about a crucial meeting which I have been invited to attend this afternoon. My billing as some sort of leader is a lot to live up to.

This meeting will affect thousands of very ill people's lives.

So we huddled together on Cley Beach. Far too cold for a coffee, but we poured one, then two, from the flask anyway, sitting on a lump of scrunching concrete. A couple of fishermen arrived for the night, lanterns in hand, silhouetted against the old light of a sparkling sea.

A man with a crew cut walked his Pit Bull home, we held our fearless Corgi on his lead and looked out. A fishing boat very close in, waves not really that bothered. I watched a couple of gulls , but without awareness.

And wasted the time by talking about the meeting. I had already been over and over it, trying to measure all possible outcomes. By the time we packed away the coffee I had forgotten that I had not even been down to the sea’s edge.

Where the spirit soars.

Mind you, we arrived home to a video message from a young girl in Australia to say thank you, for turning her life around. Through our YouTube site, she has been put in touch by someone in Australia, with a doctor who is offering proper medical care and she is now receiving legal advice . Before that she had nothing and no one and was in imminent danger of being labelled as mentally ill, such is the tragic ignorance that still surrounds severe ME.

The day was over far too quickly, long before it had a chance to get started, but I went to bed peaceful, after a celebratory glass of wine.

I woke up, looking forward to the meeting. My wife whispered in my ear last night, I was sound asleep, that Eden has left a message for me here on PurpleCoo.

I can’t help thinking we are surrounded by angels.