I thought all I have to do is keep going until the middle of April; this blog may have started off as just a competition entry but it has turned into an affair of great value and worth.
Mornings begin very early, with coffee on the table in the photograph. There surrounded by seedlings, beans, soaked in the peace and spirituality of Walsingham, perhaps an early Church bell in the distance, sometimes even hymns on the breeze, and birdsong , I am at one.
Inevitably, these days, my mind turns to the B’ og. What to say - I love the little challenge of thinking what to write about. There is not an obvious thing of interest, yet little incidents, insights begin to stir ; there is buried treasure in even a trip to Tescos and what a joy to find it.
Much more than that. I am finding the Blog a huge impetus to my own creativity. Yesterday's sparked of an important project that I spent all day working on and getting out.
Since last October I have been campaigning on YouTube for proper services and recognition of ME. It is staggering to sit here and reach out instantly all around the world. As on PurpleCoo, though much more restrained, a community has grown up, spanning every continent.
People have been urging me recently to enter an International Video Advocacy Contest. The closing date is Monday.
I just could not think of a structure. The rules restrict the film-maker to just three minutes. Apart from boil an egg....well..??
I reckoned without PurpleCoo. All those folk baring their bottoms yesterday on the front page, the Janitor's predicament - play , combined with the creative process , sent me tumbling. In a flash, as I was scrawling my blog, I could see the whole video, its flow and its message, laid out before me.
If you like, you can view the results for yourself on :
http://www.youtube.com/watch?v=ayFPLBaRpJU
How many people would guess that this was inspired by Matron's knickers ?
10 comments:
I have just viewed your video clip, that is so moving. As you know my daughter is affected, she is recovering but still has relapses. I think one of the things she found so hard was her friends didn't understand and did just abandon her, and she became a recluse for about 2 years, happily she is so much better now and heading for anew life in Spain, where the warmth should do her good.
Congratulations, both of you, on this beautiful, strong and human video. I wish you all the best in your continuing struggle, it is so hard to even get ME recognised as a disease by GPs, never mind the rest of the world.
You can never underestimate the importance of the role of Play in the creative process, I think it is fundamental, and I try to teach it to any of my students who will listen!
I am so, so proud that PurpleCoo helped and that my knickers were of use!
Bless you both -X
Oh crikey I have just been all over the www to tell you I also left a comment on your blog of yesterday, I think you know by now that I am a glorious technofluffer, hope you get all the messages ok!
Oh dear Matron has come over all aflutter that her knickers have been so helpful. A wonderful video and really does sum it up beautifully. My cousin had ME - she is recovered now and a close friend of mine also has ME - she has had to move back nearer her parents. You both come across as amazingly wonderful and warm people - I wish you both the very best and we are all here for you - to do what little we can.
I had no joy finding your video, but am a dolt techno-wise, much as it pains me to admit. Will try to find youtube first (yeah, yeah, the only person in the world not to have visited it) and then try from there. And, nosy, I know, but I've missed the bit where you explain what your books were. VERY intrigued. Please tell.
I have now found and viewed your moving film. My best wishes to you and thanks for opening my eyes.
and finally, blimey this is all *rse about *it, I have tracked down your blog about your book!!
I admire you both for fighting this together. A chronic debilitating disease with not enough publicity. I send my most sincere best wishes to you both.xx PS - love the pic of the horses.
Truly moving. Can send nothing but heartfelt wishes to you in this campaign. What you say about the creative process is so interesting; exmoorjane was writing something very similar a couple of days ago. Like you, I thought I just had to keep it up until mid April, but it so therapeutic I can't stop.
Forgot to say - how wonderful that you were inspired by this little community! (Not to mention Matron's knickers)
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